Category Archives: Usher Syndrome

Interactive Game Board Helps Toddler Learn Colors and Shapes

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Most parents would do anything to enrich their kids’ worlds and teach them what they need to know. Hacker parents often take it one step further by modifying the kid’s world to allow them to work past a disability. To wit we have an interactive game board to help a toddler learn her shapes and colors.

The toddler in question is [Becca], and her needs are special because of the progressive nature of the blindness that will result from her Usher Syndrome. [Becca] will need visual acuity testing much earlier than most toddlers, but a standard eye chart is meaningless …read more

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Stairwell Lights Keep Toddler with Night-Blindness Safe

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A devastating diagnosis for a young child is every parent’s worst nightmare. All too often there’s nothing that can be done, but occasionally there’s a window of opportunity to make things better for the child, even if we can’t offer a cure. In that case even a simple hack, like a rapid response stairwell light to help deal with night-blindness, can make a real difference.

[Becca] isn’t yet a year old, but she and her parents carry a heavy burden. She was born with Usher Syndrome, an extremely rare genetic disease that affects hearing and vision to different degrees. In …read more

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